Saturday, June 13, 2009

Fibro, Yarn, Kent... weekend as usual then

This morning, after getting up very early, and meeting the lovely Ryn at the station - she brought me pancakes. They were quite possibly the best pancakes in pancake history - we headed down to sunny Kent to meet with the downright adorable Patience and everybody's favourite Metalouise. It was very sunny, and we sat in the beer garden of Patience's local and knitted (well, they knitted, I crocheted, with my gorgeous yarn from Planetariumfish). Look at this yarn. Is it not fucking gorgeous? I'm making it into a slightly lacy cowl, and possibly some fingerless gloves. I don't normally wear limey green shades, because I'm scared of them, but this was just too pretty - I like the bruisey flashes of deep red and purple.

So, anyway. We were in Kent for World Wide Knit in Public Day, and all was well. Cider and chips and other excitement was consumed, talking was done, and I got sunburned across my shoulders because I'm cool like that. Oh yes.

I felt the need to take this picture on the way home:

Ryn and I hopped back on the train to London when the pub shut mid-afternoon (boo!); a few stops out of London Bridge, some of the local chavs decided to sit next to us. Their conversation was scintillating - I sound like such a bitch, but seriously, dude, you're barely 14, and your grasp of politics and geography has come from the headlines you glanced at while turning to page three of The Sun. Do fuck off now. Cow that I am, I abandoned Ryn at London Bridge to sit through their conversation for a few more stops, and got on the DLR home. And saw this:

Home was reached, G talked to, food consumed and I was dressed for Brackers' birthday party. So I pull on a cardi and say the magic word* to Indigo. Oh hai body fail time. I can haz working legs please? About halfway through our walk, I'm rapidly reaching the point where it looks like I'm going to need a zimmer frame in the immediate future (that would at least give me a reason to be moving so slowly). The fibromyalgia the doctors are thinking I might have - or lupus, but it's never lupus - is playing up.

I hate this. I hate not knowing if I'm going to make it home without a trip to the hospital because I can barely walk, or feeling like I've run a marathon and been beaten with sticks when all I've done is get up and make a cup of tea. I hate the headaches and how it turns me from a fairly self-sufficient person to someone who can barely make it down the stairs. It's fucking ridiculous, and I know it costs me friendships because I can't go out and do things - or stay in and do things, or I can't listen because I'm barely conscious, or can't type a coherent sentence. This week has been pretty good - I've been to the library, had meetings, walked Indigo, all sorts. And this evening I keep having to retype words because I can't fucking spell any more. So I'm going to bed.


1 comment:

  1. (((you)))

    It's never Lupus.
    I'm a hermit.
    Gareth told me that he passes the skeletons every day but not once has he mentioned.